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What has UNOS learned in its 35 years in transplant?

That the only constant is change itself.

Advancements in information technology have remapped the landscape of healthcare over the past decade. Finding the appropriate audience and being able to connect with their needs is key. Clinicians and administrators must continually adapt not only to how they communicate with each other and their patients, but also how best to input and access data as well as gather real-time feedback. UNOS’ information technology strategy continues to evolve to keep up with the ever-changing demands and needs of the transplant community. We want to partner with you.

Let our experts develop customized registries and clinical databases

UNOS can help your organization complete studies quickly and provide cost-effective solutions. In addition to our vast experience in developing and managing the UNetSM system, we also regularly build and host smaller registries and databases for the broader transplant community. These include patient-level registries for large international societies, performance improvement and outcome registries for centers, and survey registries for submitting patient data.

These are just a few of the clinical registries and databases we’ve built and managed:

  • Deceased donor research registries e.g. donation after cardiac death (DCD) donor registry
  • Association registries
  • Outcome registries for research and surveillance e.g. liver registry
  • Donor Management Goal — tracks donor critical care data and basic, de-identified recipient outcomes
  • Liver Outcome Monitoring Registry — collects liver outcome data to monitor outcomes of marginal and DCD organs

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Domestic and international information technology consulting

Our expertise at statistical modeling, tracking metrics and research let us help members, industry and other companies find technology solutions. We can even help with the development of other national transplant systems.

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