OPO and transplant center staff who would like to encourage information sharing between transplant recipients and donor families/living donors now have a toolkit of resources to help them in these efforts.
In 2011, a task force made up of members from several organizations, including the OPTN, UNOS, OPTN/UNOS committees, the federal government (HRSA), and transplant associations (AOPO, NKF and NATCO) met to develop recommendations about sharing donor/recipient information, and to create a guidance document and a toolkit of resources.
TOOLKIT CONTENTS
Guidance
- Guidance: donor families contacting recipient
- Guidance: recipient contacting donor family
- Guidance: sample letter thanking donor family
- Guidance: candidate informed consent
Forms
- Forms/Policies: information exchange
- Form: donor consent
- Form: donor family consent
- Form: HIPAA disclosure authorization
- Form: OPO – extra renal follow-up info request
- Form: OPO – recipient information
- Form: HIPAA Memorandum of Understanding (MOU)
- Form: recipient follow-up information
- Form: recipient prelisting consent
- Form: recipient transplant surgical consent
- Form: transplant center – recipient information for donor family
Policies
