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New elements added for reporting primary graft dysfunction in heart

New elements added for reporting primary graft dysfunction in heart

Audience   (Please share this notice with anyone in your organization who would benefit from it.)

  • All heart and heart-lung transplant programs: 
    • Physician Assistants, Program – Clinical Coordinators, Program Administrators/Managers, Program Directors, Programs Chiefs, Surgeons, Data Coordinators, Quality Coordinators, Quality Directors/Managers, Primary Data Coordinators, Primary Physicians, Primary Program Administrators, Primary Surgeons
  • OPTN Heart Transplantation Committee 
  • OPTN Lung Transplantation Committee 

At-a-glance statement 

New data elements have been added to the Transplant Recipient Registration (TRR) form in TIEDI® for all adult and pediatric heart and heart-lung patients. The new data collected will allow for improved monitoring of outcomes for recipients with primary graft disfunction (PGD). 

Data will be collected in the following categories: 

  • Ventricular dysfunction 
  • Ejection fraction 
  • Pressures and hemodynamics 
  • Life support and devices 
  • Inotropes and vasopressors 

Programs are required to report this data at both 24 and 72 hours post-transplant. 

Airway dehiscence has been removed from the TRR for heart candidates only. 

What you need to do 

This list is not inclusive of all the changes. Transplant personnel can access detailed information on the fields added/removed in the policy notice. 

Additional details   

This additional data collection supports the Organ Procurement and Transplantation Network’s (OPTN) strategic goal of improving waitlisted patient, living donor and transplant recipient outcomes and will support evidence-based policy development in the future, including in the development of a continuous distribution framework for all organ allocation. This project also includes revisions to Heart and heart-lung TRR upload and TIEDI worksheets. These changes are part of several other data collection changes that will be released on Sept. 14, 2023.  For more details, please see this page.

Education and resources

Online help documentation covering UNet functionality is now available. 

If you have questions relating to implementation, contact UNOS Customer Service at [email protected], or call 800-978-4334 from 8 a.m. to 7 p.m. ET.  

For policy-related questions, contact [email protected].  

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