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Data definition updates

UNOS provides a list of revised definitions to answer member questions about existing data fields and to clarify new requirements. This effort aims to provide clear, concise field definitions, improve quality of data, and provide transparency into changes. Clarifications are intended to provide guidance for future data entry. Members are not required to amend data submitted before the collection date. The process to create revised field definitions includes reviews by multidisciplinary UNOS staff and the OPTN Data Advisory Committee.

A cross-functional team of United Network for Organ Sharing staff and OPTN members continues to work on a data governance initiative to improve the consistency and quality of OPTN data collection.

The set of field definitions is published in UNet online help.

Where to find information within Secure Enterprise Help Documentation
  • Access Secure EnterpriseSM and then choose any application.
  • On the menu, choose Help and click Online Help.
    • Summary of field definition changes can be found under History of Definition Changes.
    • To view a definition for every field in each form, go to Online Help > Field Definitions.
Submit data / field definition questions

We have made it easier for you to submit data / field definition questions! Check out the new enhancements to Service Portal.

Service Portal screen showing red box around orange Data box

Service Portal screen showing Clarify data definition box

You can also contact UNet help desk at (800) 978-4334 or [email protected].


Enter data on candidates, recipients and donors. If you can’t access the site, your hospital or OPO site administrator can help you.

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Most recent data definition updates

May 5, 2023
Data ElementSystemFormDescription
Viral DetectionTIEDI®Transplant Recipient Follow-Up – All Organs (Adult, Ped)Provided clarification on testing requirement timelines.
December 19, 2022
Data ElementSystemFormDescription
HBV Vaccination StatusTIEDI®Transplant Recipient RegistrationUpdated to align with policy requirements.

Previous updates

November 30, 2022
Data ElementSystemFormDescription
HBV Vaccination StatusTIEDI®Transplant Recipient RegistrationAdded information to define full vaccination series, provide more information on reasons why vaccination was not performed, and state the intention for data collection.
October 26, 2022
Data ElementSystemFormDescription
Working for IncomeTIEDI®Living Donor Registration, Living Donor Follow-up, Transplant Candidate Registration, Transplant Recipient Registration, Transplant Recipient Follow-up – AdultAdded information to clarify what constitutes working for income.
Date Last Seen or DeathTIEDI®Living Donor RegistrationProvided clarification on how the date can be obtained.
Date: Last Seen, Retransplanted or DeathTIEDI®Transplant Recipient Registration, Transplant Recipient Follow-up – Adult/PedProvided clarification on how the date can be obtained.
Unlocking a FormTIEDI®Unlocking a formProvided additional information for explanation codes and approved by fields.
January 14, 2022
Data ElementSystemFormDescription
Post Transplant Ventilator SupportTIEDI®Transplant Recipient Registration – Lung, Heart/Lung (Adult/Ped)Provided clarification on type and duration of ventilator support.
DiabetesTIEDI®Living Donor RegistrationUpdated to provide timeframe of diabetes
September 24, 2021
Data ElementSystemFormDescription
NAT (Nucleic Acid Test) ResultsTIEDI®Transplant Recipient Registration – All organs (Adult/Ped)Provided clarification regarding RNA or DNA for NAT tests.
Cigarette Use (>20 pack years) – EverTIEDI®Deceased Donor RegistrationProvided language to clarify data field for when donor used for exactly 20 pack years.
August 6, 2021
Data ElementSystemFormDescription
Height and WeightTIEDI®Transplant Candidate Registration, Transplant Recipient Registration, Living Donor Registration, Deceased Donor RegistrationProvided guidance on entering height/weight data when/if multiple measurements are taken.
GenderWaitlistSMAdd/Edit/Remove Candidate Record, PELD CalculatorAdded intent to collect biologic and physiologic traits at birth to align with DonorNet and TIEDI.
Number of Previous Solid Organ TransplantsWaitlistSMAdd Kidney Candidate, Add Kidney/Pancreas Candidate RecordProvided examples of multi-organ transplants that are considered as one solid organ transplant.
January 15, 2021
Data ElementSystemFormDescription
Exercise Oxygen ConsumptionTIEDI®TCRAdded timeframe for reporting results.
Serum AlbuminTIEDI®TCR, TRR, LDR, LDFAdded timeframe for reporting results.
Serum CreatinineTIEDI®TCR, TRR, TRF, LDR, LDFAdded timeframe for reporting results.
October 15, 2020
Data ElementSystemFormDescription
Prior Cardiac Surgery (non-transplant)TIEDI®TCR, TRR – Adult Heart, Lung and Heart/LungProvided clarification for types of cardiac surgeries entered in this field.
FEV1, FVC, FEF25-75TIEDI®TRF – Lung and Heart/LungAdded note providing examples of pulmonary function tests.
July 15, 2020
Data ElementSystemFormDescription
Patient Need Dialysis within First WeekTIEDI®TRR – Kidney, Kidney/PancreasNote added to include all forms of continuous renal replacement therapy (CRRT) as dialysis for this field.
Any Extracorporeal Support Given (ECMO, etc.)TIEDIDDRProvided clarification for ECMO support.
Has the patient been hospitalized since the last patient status dateTIEDITRF – Thoracic – 6 MonthsProvided clarification on reporting post transplant data during first year for thoracic transplants.
January 15, 2020
Data ElementSystemFormDescription
Other tobacco usedTIEDI®Living donor registrationAdded clarification on vaping and electronic cigarette usage.
Post-transplant malignancyTIEDIThoracic transplant recipient follow-up (six months)Added clarification on reporting post-transplant malignancy during first year for thoracic transplants.
Dialysis since last follow-upTIEDIKidney, kidney-pancreas transplant recipient follow-upProvided clarification for temporary dialysis.
October 15, 2019
Data ElementSystemFormDescription
Components of ISHLT primary graft dysfunction (PGD) grade: Intubated at 72 hours, PaO2 at 72 hours, FiO2 at 72 hours, ECMO at 72 hours, Inhaled NO at 72 hoursTIEDI®Lung TRRClarified that the starting point of calculating 72 hours.
Cigarette Use (>20 pack years) – EverWaitlistSMHeart/Lung Candidate
Lung Candidate
Added clarification on vaping and e-cigarette usage.
Number of hospitalizations for heart failure in the last 12 monthsWaitlistAdult Heart Status Justification FormClarified hospitalizations include both observation and inpatient stays.
July 15, 2019
Data ElementSystemFormDescription
Cigarette Use (>20 pack years) – EverTIEDI®DDRAdded clarification on vaping and e-cigarette usage.
GenderTIEDITCR, TRR, TRF, Liver Recipient Explant Pathology RecordUpdated definition to be consistent with Donor Gender.
Total Pancreas Preservation TimeTIEDIPancreas, Kidney/Pancreas TRRUpdated Total Pancreas Preservation Time to align with recent cold ischemia time updates made on the Kidney and Liver TRRs.
Total Organ Preservation Time From Cross Clamp to In Situ Reperfusion (include warm and cold time) – Heart, Heart-Lung; Left Lung; Right Lung (OR EN-BLOC)TIEDIThoracic TRRUpdated definition to be consistent with Kidney, Kidney-pancreas, and Liver cold ischemia times.
CMV TotalTIEDILDRUpdated definition to clarify that the CMV total is a separate test and cannot be extrapolated from IgG and IgM.
EBV TotalTIEDILDRUpdated definition to clarify that the EBV total is a separate test and cannot be extrapolated from IgG and IgM.
Coronary Artery DiseaseTIEDIThoracic 1- through Post 5-Year TRFReplaced “new signs and symptoms” with a general diagnosis to capture CAD, also removed the “Note.”
Total Ischemic Time (Include cold, warm and anastomotic time)TIEDIIntestine TRRUpdated Total Ischemic Time for Intestine to align with recent cold ischemia time updates made on the Kidney, Pancreas, and Liver TRRs.
Did patient have any acute rejection episodes between transplant and discharge; Did patient have any acute rejection episodes during the follow-up period.TIEDITRR, TRF (does not include 5-month Thoracic & Post 5-year for all organs)Provided intent for reporting new episodes since last follow-up.
If Yes, Core Cooling UsedTIEDIDDRProvided clarification of Core Cooling.
April 15, 2019
Data ElementSystemFormDescription
New diabetes onset between last follow-up to the current follow-upTIEDI®Intestine, Kidney, Liver, Thoracic TRFAdded guidance to address onset reported on previous follow-up forms. This excludes gestational diabetes.
Total Cold Ischemia TimeTIEDI®Kidney, Kidney-Pancreas TRRTotal Cold Ischemia Time is the number of hours between donor kidney cross-clamp to recipient kidney reperfusion, with reperfusion being defined as when the first arterial clamp is removed and blood flow restored with warm recipient blood (i.e. first clamp removed in situ).
Graft StatusTIEDI®Kidney TRR, TRFReason for dual or en bloc kidney graft failure.
Initial Flush Solution, Back Table Flush Solution, Final Flush/Storage SolutionTIEDI®DDREquivalent solution should be selected when the specific name of a solution is not listed as an available choice.
HBV DNATIEDI®Intestine, Kidney, Kidney-Pancreas, Liver, Pancreas, Thoracic, Thoracic – 6 Months TRFPCR and NAT testing can be used to submit response for the HBV DNA test, similar to the HIV NAT and HCV NAT test.
Patient on insulin?TIEDI®Kidney-Pancreas, Pancreas TRF, TRRInsulin dosage per day and duration of use is the number of days since the transplant occurred.
Ventricular tachycardia (VT) or ventricular fibrillation (VF)WaitlistSMAdult Heart Status 2 Justification FormAnti-tachycardia pacing (ATP) can qualify as electrical cardioversion, in a hospital candidate on anti-arrhythmic medication.
Has the candidate experienced hemoglobinuria?WaitlistSMThoracic Justification FormSelect Unknown if Urine Analysis was not done since submission of last justification form.
Furosemide, Torsemide, Bumetanide, Chlorothiazide, Metolazone, Other diureticWaitlistSMThoracic Justification FormEnter the maximum limit if value is above the maximum allowed limit, and enter the minimum value if it is below the minimum allowed value.
January 15, 2019
Data ElementSystemFormDescription
Add/Edit Donor
Intent is to collect biologic and physiologic traits (sex) at birth.
Total Cold Ischemic TimeTIEDI®Liver TRRCold ischemic time starts when the organ is cross-clamped and ends when it is first perfused with warm recipient blood (i.e. first clamp removed in situ). Previous to this change, the hepatic artery and portal vein clamps both had to be removed before ischemic time ended.
Prior Cardiac Surgery (non-transplant)TIEDI®Heart, Lung and Heart-Lung TCRVAD should be included in the report of previous cardiac surgeries.
Time of implant/initiationWaitlistSMAdult Heart Status Justification FormNew data collection element released, initial definition established with implementation of heart allocation policy on 10/18/2018.
Patient Using Either Oral Medication or Diet for Blood Sugar ControlTIEDI®Pancreas and Kidney-Pancreas TRR and TRFAny anti-hyperglycemic medications should be listed in this field, including oral and non-insulin injectables.


The OPTN’s secure transplant information database contains all national data on the candidate waiting list, organ donation and matching and transplantation. Organ transplant institutions use the system to match waiting candidates with donated organs. Institutions also rely on the database to manage time-sensitive, life-critical data, before and after their patients’ transplants.

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