Notice of Privacy Practices and UNOS Privacy Policies Updated

May 28, 2026, Richmond, VA

UNOS is committed to protecting the privacy and confidentiality of the individuals we serve. As part of our ongoing efforts to maintain transparency and ensure compliance with evolving regulatory and operational standards, we have recently revised and updated our Notice of Privacy Practices (NPP) as well as the United Network for Organ Sharing (UNOS) Privacy Policies.

These updates reflect enhancements to how personal and health information is collected, used, shared, and safeguarded within our organization and in coordination with national transplant systems. The revisions also align with current legal requirements and best practices in data protection.

What this means

While our core commitment to privacy remains unchanged, the updated policies provide:

  • Greater clarity on how your information may be used and disclosed
  • Additional details about your privacy rights and choices
  • Updated language reflecting current standards and processes
  • Expanded information regarding data security and protection measures

Review the updated policies

We encourage all patients, donors, families, and visitors to review the revised documents to stay informed about how your information is handled and about your rights regarding that information.

Questions or concerns?

If you have any questions about these updates or how your information is protected, please contact our Privacy Office. We are here to help ensure you feel confident and informed about your privacy. Thank you for your continued trust as we work to uphold the highest standards of privacy and care.

 

 

UNOS Statement

UNOS is a nonprofit organization with decades of experience in helping save lives through research, technology, innovation and education.

Media inquiries

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